Thanks for all of the kind comments about my prototype mouse - I think bigger ears and a pointier nose is the next thing to try out. I also wanted to say that if you fancy revisiting some of the fun songs from your childhood there is a great CD with lots of them on - Nellie the Elephant, The Runaway Train, The Ugly Duckling, The laughing Policeman... and many more although sadly not the Old Amsterdam song. It's called Hello Children Everywhere by EMI records.
Over the next week I need to take a wee blogging break and get some stuff sorted out for Toby. I need to read some stuff and write some stuff and get my head around some other stuff! A friend recently sent me this and I thought I'd share it here as it does sum up many of the feelings that you live with when your child has special needs...
WELCOME TO HOLLAND
by Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
c1987 by Emily Perl Kingsley. All rights reserved
I landed in 'Holland' four and a half years ago when we had a diagnosis of severe autism confirmed for our 2 year old son.
These days I have moments when I forget that I ever wanted to go to 'Italy' but most of the time I'm still struggling to get to grips with the language and different customs of 'Holland'. Sometimes it needs quite a lot of hard work and some new guide books and I'm at that point right now where I need to go find a quiet corner and read for a bit in the hope of better understanding where I find myself. I've also got lots of paperwork to fill in for his annual statement of educational needs review.
So I'm off for a little break from blogging (just a week or so) to give myself time to concentrate fully on the task in hand.
Gauw tot ziens! (see you soon in Dutch - I think!)
Hello to all of my Dutch friends (especially the lovely Martine)
