Firstly I wanted to say sorry for being so downbeat in my last post, usually I'm able to find a bit more balance and positivity. Thank you so much to everyone who took time out of their day to comment or send me a personal message. Your kindness, compassion and wisdom have warmed me so much, your own personal stories that you shared with me have given me courage, and I'm feeling enveloped in a collective hug. Thank you for your generosity of sprit, I am deeply grateful, J x
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At the beginning of April it was the two week Easter break from college and so we had Toby here full time, and do you know what - it's been a good time.
During this time I've not tried to do anything at all other than meet his needs and potter around without any aims whilst he's been busy watching his dvds or looking at his picture books. We walked every day, rain or shine, and those have been some of the best times, when he's been at his most relaxed and happy. And when he's happy, we're all happy, my wellbeing is definitely deeply intertwined with his.
These days of 'down-time' have made me rediscover something that I've lost hold of in recent years, and that is that meeting Toby's needs is not the problem. The difficulties actually arise from trying to fit in everything else.
I've realised that I've fallen into bad habits with work. The first thing I do each morning is check and respond to my emails and messages while my pot of tea is brewing. Checking and replying to emails is the last thing I do before bed too, and I'm often typing as quickly as I can when I hear the last strains of Richard Scary's 'best silly songs ever' dvd at 11pm, which is what Toby has watched for the last 20 years as his last dvd before bedtime (autism dictates a rigid and reliable routine). I don't usually have any set daily downtime, and as a result I'm often trying to concentrate on things that need my full attention whilst Toby is around. Inevitably I'm interrupted, loose my train of thought, and get grumpy and frustrated, and as a result nothing gets done as well as I would like.
When you work for yourself, especially if you work from your dining room table, the lines between work and home are blurred. It's hard to give yourself permission for time off and all too easy to keep the pressure up to keep doing more. I don't yet have a firm plan of how to tackle this, although to begin with I am going to try to put some 'office hours' in place to try and regain a little balance in my days, but I'm now certain that I do need to change the way that I'm currently doing things in order to stay well and be able to care for Toby long term. It's a long overdue realisation and I'm glad it has finally dawned on me, hopefully it will help going forward.
Since he returned to college last week I've been spending a lot of time thinking, some of it out in the bluebell woods, and it's been beautiful and peaceful out there. I've also been working on a little pattern writing and am getting closer to finishing off my spring lamb too, I hope to have her ready for a giveaway in the next few weeks.
I hope that there's some goodness in your days at the moment, and if things are a bit wobbly for you, I hope that you soon find the beginning of a path leading to better days ahead,
J x
